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However, he spent about 20 minutes with me and told me he was sending me to a neurosurgeon.He showed me my brain mri, but I felt like I was in a time warp so I don't think it sunk in and I didn't hear a thing he said, due to him going so quickly through everything.Hi we do have a member from NZ....unfortunately she lost her son....was doing some awareness over there, if u can get in touch with her, she would be the one to talk to in regards to Drs.I was diagnosed a month ago i am waiting to see the nuerologist and the ent consultant looking back over the years i think this has affected me in other ways iv had balance problems for years i have had 4 lots of surgery on my ankle that has left me disabled iv had the bones taken out of my ears which may be a conected the last year iv been feeling terrible i have had numb hands and arms in bed iv had to get up in the night and move around before the circalation comes back iv had bad pains the left side of my head that have frightened me iv had the shakes bad neck pain pressure in my head and funny feeling in my legs where i cannot stand up and a sticky feeling in my throat that makes me cough and before i was diagnosed i though what is going on with my body i was popping up new simptons every day I was diagnosed a month ago i am waiting to see the nuerologist and the ent consultant looking back over the years i think this has affected me in other ways iv had balance problems for years i have had 4 lots of surgery on my ankle that has left me disabled iv had the bones taken out of my ears which may be a conected the last year iv been feeling terrible i have had numb hands and arms in bed iv had to get up in the night and move around before the circalation comes back iv had bad pains the left side of my head that have frightened me iv had the shakes bad neck pain pressure in my head and funny feeling in my legs where i cannot stand up and a sticky feeling in my throat that makes me cough and before i was diagnosed i though what is going on with my body i was popping up new simptons every day Hi and welcome to the Chiari forum.cid=186 Surgery is not a cure or a fix for chiari, but a means to slow progression and restore CSF flow.

I was recently diagnosed with Chiari 1 Malformation.Realize if you have 0cm or 22 cm the size of the herniation means nothing.What is important is how it is blocking the fluid that.a portion of the cerebellum called the cerebellar tonsils protrudes out of the base of the skull into the spinal canal.I always put my headaches and other issues off as my fibro...Could use some advice on how to deal with all this? I am 34 and was just informed over the phone by my dr. He referred me to a neurologist, which I thought was going to take time to explain things to me and tell me what is going on.

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